This is not a happy read, and if you feel it's not for you, perhaps it's best not to read it. I'll find an image soon.
Some people know I've been digging into the origins of what's now called Alzheimer's Disease for a while now. I'm no historian, and there's a lot more to research which will take time I might not have. I'm curious, and where I know fewer facts a story has begun to emerge.
Auguste D. was the 'case' where Alois Alzheimer did an autopsy to look at her brain after she died. This poem comes from some of my reading, taking from imagination what Auguste Deter's life might have been like before she was taken to the Asylum in Franfurt in 1901. It's an experiment and an exploration, both about the life of the individual and the society and times when she lived.
If you have anything that might improve my knowledge, I'd love to hear from you. This is probably an early draft, with more to come.
She’d lost herself, she said
Cooking and cleaning. I kept quiet.
Friends? No, I had Karl, and Karl had me.
I did his bidding, what he wanted me to be,
like Mother did, and her own mother too.
I was all he asked for, more. Now I am fifty.
My daughter's grown, she’s married well.
I taught her what I knew.
She lives the way I’ve lived.
I think I’ve let her down.
I hardly see her
but her eyes are red and sad.
We could have gone on until some kind of end.
I had a roof, enough to eat, that’s something.
My mother’s voice whispered it loud.
...
One day I saw them, her hand tucked
under his arm. Her head just reached his shoulder.
Years since I felt his body through my touch.
He looked down at her, and he smiled.
I ran back, tried to stay steady
but the ground quaked and the pans
crashed on the kitchen tiles.
No matter what I did , the picture
wouldn’t fade.
Her arm tucked under his.
The look.
The smile.
And not for me, one single smile,
for all those years.
I was no longer his,
he was not mine.
I was, he said, unwell.
My duties were undone,
and so was I.
I did not fulfil
his expectations from a wife,
and more. I didn’t hear.
I said I saw them walking in the street.
What patience there was left drained from his face.
He placed his knife and fork on his plate,
stood up. You’re ill, you must be mad.
You made it up. He left the house.
I know now where he went.
I cleared away, my hands shook.
The plates smashed on the tiles.
I swept the floor. However
hard I swept, the sharp shreds
stayed.
….
You’re mad, he said.
I saw you, saw you with her.
It’s Monday, wash the sheets.
I can’t, I whispered.
You’re not well. I’m going
to get you help.
I'd seen her, even smiled.
Her husband died not long ago.
Known. Greeted. Neighbour.
Her hand tucked under his arm,
looking up at him. I saw you with her.
You’re mad, he said again, and left the house.
I sobbed. And when I’d cried
I heard him in the hall.
That’s it, he said. I’ve found a place.
A place?
A place for you to go,
where they’ll take care of you
for now. He frowned hard as he spoke,
his voice tight in his throat.
Go. What could be worse than this?
I knew it well. Gardens, grand house,
though I knew what it was. I cried.
You’re mad, he said. You don’t do
what you should, what wives should do.
His big fists held his knife and fork,
white at the knuckles. Get your things.
What now?
Yes, now.
I didn’t know which things were mine.
I got some things.
…..
My arm was under his, gripped
by his elbow so it hurt.
It wasn’t kind, he feared I’d run
or cry, and shame him.
They met us at the door.
They signed me in.
The hall was big, sun shining
through huge windows.
She’s not well.
They summed me up.
They didn’t smile. He paid.
He left, he didn’t look at me.
They took me to the back,
dark, sunless, cold.
A corridor of rooms,
the doors all shut.
A hostile smell.
The sounds.
I heard the sounds.
The door they said was mine
was opened. I went in.
The door was closed.
Goodness, Maxine. I so admire the way you're dealing with this disease. By researching and writing, you offer everyone knowledge and information as well a more human insight. Thank you xxx Rachael
Wow, moving and an important picture to draw that is often overlooked.